{"id":5286,"date":"2021-06-23T15:25:12","date_gmt":"2021-06-23T15:25:12","guid":{"rendered":"https:\/\/blog.cancerhopenetwork.org\/?p=5286"},"modified":"2023-05-11T09:28:25","modified_gmt":"2023-05-11T13:28:25","slug":"practicing-gratitude-finding-hope","status":"publish","type":"post","link":"https:\/\/cancerhopenetwork.org\/blog\/practicing-gratitude-finding-hope\/","title":{"rendered":"Practicing gratitude, finding hope","gt_translate_keys":[{"key":"rendered","format":"text"}]},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"5286\" class=\"elementor elementor-5286\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-437fed06 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"437fed06\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-274ef9da\" data-id=\"274ef9da\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6cbef49 elementor-widget elementor-widget-text-editor\" data-id=\"6cbef49\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.18.0 - 20-12-2023 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p><!-- wp:paragraph --><\/p>\n<p>What the dermatologist thought was dry, itchy patches of eczema turned out to be worse. Much worse.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>A practicing nurse, Donna was able to pull her own biopsy results up and recalls thinking that they \u201cdidn\u2019t sound like anything good.\u201d The next day, her dermatologist called and made her worries a reality. \u201cHearing him say \u2018you have cancer\u2019 was a punch in the gut. I\u2019d always been on the other side of the treatment table and I was emotionally unprepared.\u201d<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Donna\u2019s diagnosis of mycosis fungoides, a type of cutaneous T-cell lymphoma (CTCL), was so rare the oncologist pulled a large book from the shelf and told her they\u2019d read about it together. (<a href=\"https:\/\/medlineplus.gov\/genetics\/condition\/mycosis-fungoides\/\">There are only 3.6 cases per million people per year<\/a>.)<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Treatments started off with steroidal creams and topical chemotherapy and progressing to ultraviolet treatments in a light box. \u201cBut mycosis fungoides can become aggressive without much notice,\u201d Donna says. \u201cI ended up with every treatment under the sun, culminating with a stem cell transplant.\u201d Her husband was a rock, helping her through treatments, always the healthy one.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Today, she\u2019s in longterm remission and grateful for the monitoring she receives every six months.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:image {\"id\":5300,\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} --><\/p>\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" class=\"wp-image-5300\" src=\"https:\/\/i0.wp.com\/cancerhopenetwork.org\/wp-content\/uploads\/2021\/06\/eHOPE-Donna-Hussey-2.jpg?resize=800%2C800&#038;ssl=1\" alt=\"\" data-recalc-dims=\"1\"><\/figure>\n<p><!-- \/wp:image --><!-- wp:paragraph --><\/p>\n<p>\u201cI am more present, more aware, more mindful of a lot of things.\u201d Donna has committed to journaling her gratitude, writing down beautiful moments of humanity and joy so she will never forget them. She notices birds flying, the simple pleasures of getting in her car. She revels in the meaningful delight of hugging her children.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>During treatment, she was so weak that making a sandwich felt impossible and standing in front of the fridge required a stool because she was so fatigued. Friends from church jumped to her aid, cooking meals for several weeks. Like many survivors, the treatments that saved her life have also had a long-lasting impact.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Donna recalls her struggle adjusting to hair loss. \u201cWhen the wind would below, I would hold my wig down. I had a wig consultant come to the house and was terrified \u2013 how would I put my glasses on?\u201d She lost her eyebrows, but over the years, has learned to hand-draw them with such skill that strangers on the street have stopped her to compliment them. She channels that remembered pain to help patients she\u2019s matched with today. \u201cThose fears are just growing pains. I can offer hope.\u201d (Click <a href=\"\/support\">HERE<\/a> to request a free and confidential peer support match.)<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:image {\"id\":5290,\"sizeSlug\":\"large\",\"linkDestination\":\"custom\"} --><\/p>\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/cancerhopenetwork.org\/how-to-help\/volunteer\/become-a-volunteer.html\"><img decoding=\"async\" class=\"wp-image-5290\" src=\"https:\/\/i0.wp.com\/cancerhopenetwork.org\/wp-content\/uploads\/2021\/06\/eHOPE-Donna-Hussey-1.jpg?resize=800%2C800&#038;ssl=1\" alt=\"\" data-recalc-dims=\"1\"><\/a><\/figure>\n<p><!-- \/wp:image --><!-- wp:paragraph --><\/p>\n<p>When asked about the best advice she\u2019s gotten, Donna\u2019s answer is swift, recalling her dermatologist telling her to \u201cbe hopeful because there are some brilliant people working every day to find a cure.\u201d She\u2019s paid that hope forward, encouraging the patients she mentors to always keep hope. \u201cWhen you lose hope, you fall to pieces and you won\u2019t have strength to fight.\u201d<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Diagnosed at a time when the internet was in its infancy and support groups were unavailable for cancers as infrequently diagnosed as her, Donna is committed to ensuring no one faces mycosis fungoides alone. She\u2019s an active member of a closed Facebook group providing support to patients \u2013 \u201cPeople will show pictures or share symptoms. In a strange way, it\u2019s comforting.\u201d She\u2019s shared her story with the <a href=\"https:\/\/youtu.be\/pluLDFOl_4Y\">Cutaneous Lymphoma Foundation<\/a> and has served as a Support Volunteer at Cancer Hope Network since 2013.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:image {\"id\":5296,\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} --><\/p>\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" class=\"wp-image-5296\" src=\"https:\/\/i0.wp.com\/cancerhopenetwork.org\/wp-content\/uploads\/2021\/06\/donna-layout.jpg?resize=800%2C450&#038;ssl=1\" alt=\"Donna's CHN notebook is filled with mementos from her years as a volunteer. \" data-recalc-dims=\"1\"><\/figure>\n<p><!-- \/wp:image --><!-- wp:paragraph --><\/p>\n<p>\u201cI volunteer because when I was diagnosed, there was no one to talk to. Nobody knew anything, we were just there to hold each other up. I volunteer to give people what I didn\u2019t have.\u201d<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Want to connect with a survivor volunteer like Donna? Call 877-HOPENET (877.467.3638) or <a href=\"\/support\">request a match online<\/a>. Want to use your personal experience as a survivor or caregiver to provide hope for others? <a href=\"\/volunteer\/\">Click to learn more about becoming a survivor or caregiver volunteer<\/a>.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:separator --><\/p>\n<hr class=\"wp-block-separator\">\n<p><!-- \/wp:separator --><!-- wp:list {\"ordered\":true} --><\/p>\n<ol>\n<li>U.S. National Library of Medicine. (2021, May 17). <em>Mycosis fungoides: MedlinePlus Genetics<\/em>. MedlinePlus. https:\/\/medlineplus.gov\/genetics\/condition\/mycosis-fungoides\/.&nbsp;<\/li>\n<\/ol>\n<p><!-- \/wp:list --><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t\t\t<\/div>\n\t\t","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"excerpt":{"rendered":"<p>Meet longterm rare-cancer survivor Donna <\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"author":23,"featured_media":5352,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_newsletter_tier_id":0,"footnotes":""},"categories":[78],"tags":[42,197,457,458,459,91],"post_folder":[],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v20.11 (Yoast SEO v21.8) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Practicing 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