{"id":3693,"date":"2019-08-22T19:11:58","date_gmt":"2019-08-22T19:11:58","guid":{"rendered":"https:\/\/blog.cancerhopenetwork.org\/?p=3693"},"modified":"2023-11-10T16:08:15","modified_gmt":"2023-11-10T21:08:15","slug":"gratitude-and-growth-spotlight-on-bill-meade","status":"publish","type":"post","link":"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/","title":{"rendered":"Gratitude and growth: Spotlight on Bill M.","gt_translate_keys":[{"key":"rendered","format":"text"}]},"content":{"rendered":"

Talk with Bill for five minutes, and you\u2019ll probably want to clear your calendar for the rest of the day. He\u2019s that interesting – and that inspiring!
\n\"match<\/a><\/p>\n

Long-term survivor of acute lymphoblastic leukemia (ALL), Bill has been gardening since he was 12 (\u201cI\u2019ve built three greenhouses in my life. I found some Japanese trailing petunias that are out of this world. I order the seeds and baby the tiny plants from seed. We went out on a limb this year and added two blueberry plants. I just finished canning 5 quarts of blueberry jam\u201d). He paints (\u201cI\u2019d inherited some talent and some skill from my artist father \u2013 and I had a knowledge of colors from my photography training. I sucked for a long time and I just kept trying and throwing away and trying again. Pretty soon, they got a little better, and a little better.\u201d). He poured a concrete vanity as part of his whole-home remodeling project (\u201cYou can learn to do pretty much anything on the internet. You just have to be mildly skilled at using big tools.\u201d) and is a part-time fairway mower at his local golf course (\u201cI like being forced to get up at 4am. Plus the free golf, free range balls and carts are nice.\u201d)
\nAnd oh, yeah, he also volunteers with three organizations to help others who are facing their own ALL experience.<\/p>\n

Ten years after cancer entered his world, the days following his diagnosis remain vivid. \u201cI clearly remember lying in bed at Oregon Health and Science University Hospital (OHSU) in Portland in the fall of 2009. I had been diagnosed with acute lymphoblastic leukemia weeks earlier.\u201d<\/p>\n

\u201cThe doctor just pronounced to my wife and I, \u2018Well, we\u2019ve got you in total remission, now we\u2019ll work on your transplant. It\u2019s a full non-related bone marrow transplant, using stem cells.\u2019 He left the room and I looked at my wife and said, \u2018What the heck does that mean?\u2019\u201d
\n\"eHOPE
\n\u201cIt was a gut punch,\u201d he continues. \u201cI was an athlete, in unbelievable good shape for my age of 59. I thought I was going to live until 100. No one in my big family had ever gotten cancer.\u201d But the cancer had arrived.<\/p>\n

Today, after a successful transplant, countless blood draws and lumbar punctures, so many prescriptions that he created a spreadsheet, an ongoing battle with Graft Vs Host Disease (GVHD), and more bone marrow biopsies than he\u2019d like to recall (\u201cThey go through the big plate in the back of your pelvis to take a piece of bone marrow out of your pelvis. Some techs are so good at it that it doesn\u2019t hurt. A lot of hospitals don\u2019t offer a shot of morphine when you\u2019re prepping for a bone marrow biopsy. There are no significant side effects, it just relaxes you. Take. The. Morphine.\u201d), Bill is back at home and hard at work helping others.
\nHe serves as a Support Volunteer for Cancer Hope Network as part of our partnership with St. Charles Medical Center, works with the Leukemia and Lymphoma Society, shares his experience via the National Bone Marrow Transplant Link and is active online in Facebook groups dedicated to helping the ALL community.<\/p>\n

\u201cI\u2019m pretty tough,\u201d he laughs, recalling the years raising his kids. \u201cIf there was any kind of medical situation, because I\u2019m the son of a nurse, everyone came to me. I was the one who stayed calm and made the plan or took them to the emergency room.\u201d That calm has carried into his life after diagnosis, helping him provide comfort for patients and caregivers facing their own life-altering diagnoses.
\n\u201cLeukemia is what it is,\u201d he says. \u201cIt just matters how I\u2019m going to deal with it. You get to decide how you\u2019re going to deal with it. I recognize the place my matches are in their journey. I try to get them thinking positive.\u201d<\/p>\n

He lives his life by the golden rule, sharing his hard-won experience and the first-hand information he longed to receive. \u201cWhen I was in treatment, I was wishing I could talk to somebody. Cancer Hope\u2019s mantra of \u2018Talk with someone who\u2019s been there\u2019 is so valuable. Doctors give you a rosy picture \u2013 someone who\u2019s been there can tell you the unvarnished truth. They can also help you take everything in stride.\u201d<\/p>\n

His advice is elegantly simple: \u201cBe grateful. Be grateful. Be grateful. The mental aspect is the toughest. We all have to have bone marrow biopsies and we all complain about it. I remind people that they\u2019re upright, they\u2019re breathing. Once you start talking about how long you\u2019re going to live or if you\u2019re going to live, you\u2019re grateful for what happens.\u201d<\/p>\n

\u201cFortunately, they\u2019ve got this down. Which is what I tell my patients. At least we have a disease, a cancer, that they know how to fix.\u201d<\/p>\n

He encourages his matches to respect their medical team, but not to be afraid of them. \u201cI don\u2019t go into a meeting or an exam with the idea that whatever the doctor say goes. I judge them by how they treat me. I work with them to find what works for me. I\u2019ve been fortunate to have some amazing doctors. The doctor who was in charge of my transplant team was brilliant and a world-renowned expert. He was also a super-nice guy. I\u2019m not bashful about telling patients to talk to their doctors.\u201d<\/p>\n

Bill remains grateful for the support he received \u2013 from friends around the world, from family and most of all, from his wife of 50 years, Sandy. \u201cMy wife was an unbelievable trooper. She dwarfed everybody. We had to stay at OHSU when I had my transplant. When we first went down, they had no support bedroom, just a breakroom with a bench. She slept there for several days. After my transplant, we rented an apartment to be near the hospital. I lost 62 pounds. I lost my hair, my eyebrows, my eyelashes, fingernails and toenails. I looked like a walking salamander.\u201d<\/p>\n

\u201cWe complicated that by adding an 89-year old grandfather with dementia. We got a call in the middle of the night one evening \u2013 he\u2019d left the apartment and the police called so we could come pick him up. I could barely walk, but we had to barricade the door to the apartment each night. Through it all, she was there. She was incredible.\u201d
\n\"eHOPEThe former high school football player and longtime soccer coach reverts to sports when asked about the lessons cancer has taught him. \u201cIt\u2019s a marathon, not a sprint. I\u2019m 10 years out and I have neuropathy in my fingers and my toes. My fingers tingle, and my toes are numb. That\u2019s not going away. You\u2019re not going to get your transplant and go back to where you were like you had a cold. You\u2019ll never be the same. But you will find happiness and a full life.\u201d<\/p>\n

He concludes simply, \u201cLive the rest of your life being grateful for beating\u00a0cancer and grateful for everything in life that you still have.\u201d<\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"excerpt":{"rendered":"

Talk with Bill M for five minutes, and you\u2019ll probably want to clear your calendar for the rest of the day. He\u2019s that interesting. And that inspiring.<\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"author":23,"featured_media":8631,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_newsletter_tier_id":0,"footnotes":""},"categories":[78],"tags":[342,343,344],"post_folder":[],"acf":[],"yoast_head":"\nGratitude and growth: Spotlight on Bill M. - Cancer Hope Network<\/title>\n<meta name=\"description\" content=\"Long-term survivor of acute lymphoblastic leukemia (ALL), Bill has been gardening since he was 1\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Gratitude and growth: Spotlight on Bill M.\" \/>\n<meta property=\"og:description\" content=\"Long-term survivor of acute lymphoblastic leukemia (ALL), Bill has been gardening since he was 1\" \/>\n<meta property=\"og:url\" content=\"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/\" \/>\n<meta property=\"og:site_name\" content=\"Cancer Hope Network\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CancerHopeNet\" \/>\n<meta property=\"article:published_time\" content=\"2019-08-22T19:11:58+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-11-10T21:08:15+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/cancerhopenetwork.org\/wp-content\/uploads\/2019\/08\/Gratitude-and-growth_Spotlight-on-Bill-M..jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"815\" \/>\n\t<meta property=\"og:image:height\" content=\"629\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Brandon Pantano\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@CancerHopeNet\" \/>\n<meta name=\"twitter:site\" content=\"@CancerHopeNet\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Brandon Pantano\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/\"},\"author\":{\"name\":\"Brandon Pantano\",\"@id\":\"https:\/\/cancerhopenetwork.org\/#\/schema\/person\/0b4a729980018733a63833ec14c219d4\"},\"headline\":\"Gratitude and growth: Spotlight on Bill M.\",\"datePublished\":\"2019-08-22T19:11:58+00:00\",\"dateModified\":\"2023-11-10T21:08:15+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/\"},\"wordCount\":1206,\"publisher\":{\"@id\":\"https:\/\/cancerhopenetwork.org\/#organization\"},\"keywords\":[\"acute lymphoblastic leukemia\",\"ALL\",\"GVHD\"],\"articleSection\":[\"Survivor and Caregiver Stories\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/\",\"url\":\"https:\/\/cancerhopenetwork.org\/blog\/gratitude-and-growth-spotlight-on-bill-meade\/\",\"name\":\"Gratitude and growth: Spotlight on Bill M. - 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