{"id":21706,"date":"2023-06-02T13:00:13","date_gmt":"2023-06-02T17:00:13","guid":{"rendered":"https:\/\/cancerhopenetwork.org\/?p=21706"},"modified":"2023-11-10T15:45:23","modified_gmt":"2023-11-10T20:45:23","slug":"in-the-woods-with-cancer-day-one","status":"publish","type":"post","link":"https:\/\/cancerhopenetwork.org\/blog\/in-the-woods-with-cancer-day-one\/","title":{"rendered":"In the Woods with Cancer: Day One","gt_translate_keys":[{"key":"rendered","format":"text"}]},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"21706\" class=\"elementor elementor-21706\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-7b403c07 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7b403c07\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-61d45b48\" data-id=\"61d45b48\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-471951ed elementor-widget elementor-widget-text-editor\" data-id=\"471951ed\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.18.0 - 20-12-2023 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p><!-- wp:paragraph --><\/p>\n<p>My husband, Joe, and I have been married for almost five years. We\u2019ve been together closer to nine, but decided in July 2018 to marry in my small hometown of Frenchtown, NJ in the little bookstore that had become a hub for us. We\u2019re both authors and the closest independent bookstore is always the first place we go to make friends. Back in 2018, it was called The Book Garden, and we loved it and the owners so much that we decided it was the best place to bring our six kids\u2014three from each of our previous marriages\u2014and have the mayor officiate and sign our papers. It was simple, sweet, and incredibly meaningful. An absolute match to our relationship.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:image {\"align\":\"right\",\"id\":21708,\"width\":254,\"height\":379,\"sizeSlug\":\"full\",\"linkDestination\":\"none\"} --><\/p>\n<figure><img fetchpriority=\"high\" decoding=\"async\" class=\"alignright\" src=\"https:\/\/i0.wp.com\/cancerhopenetwork.org\/wp-content\/uploads\/2023\/05\/mt-rose-1.jpg?resize=254%2C379&#038;ssl=1\" alt=\"\" width=\"254\" height=\"379\" data-recalc-dims=\"1\" \/><\/figure>\n<p><!-- \/wp:image --><!-- wp:paragraph --><\/p>\n<p>In August, we had a bigger event at Lake Tahoe. We both teach writing in an MFA program out there that affords us occasional expense-paid trips to teach on campus. What better beauty to have a wedding and once again, free! This time we dressed up proper, me in a handmade, vintage lace Etsy gown, and Joe in his kilt. One of our closest friends married us beneath the peaks at Mt. Rose with a community of writers and teachers we hold dear.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Then, less than a week later, back in Frenchtown, a truck came crashing through the building next to ours, exploded, and started a fire that would leave us homeless with nothing except the pajamas we wore when we escaped our tiny apartment. We spent one last year in New Jersey, only because a generous landlord gave us a discount on a house, but I cringed every time a truck passed by. I could no longer handle the sound of traffic. Meanwhile, Joe\u2019s contractual university job was ending, and soon we decided it was time to move south, something I\u2019ve wanted to do for a long time to escape winter.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>We had our sights set on rural Virginia, but somewhat close to Harrisonburg, a college town with jobs and amenities, no more than 30 minutes away. The combination of living in the woods, but being able to take a short drive to a coffee shop or see a show seemed perfect. However, our house fell through and we had to scramble once more. What played out over the next two months, as we lived out of an Airbnb, was nothing short of miraculous, but we ended up in a place we never would have expected: the mountains of West Virginia.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:heading --><\/p>\n<h2><strong>Living in West Virginia: The Start of Our Journey<\/strong><\/h2>\n<p><!-- \/wp:heading --><!-- wp:paragraph --><\/p>\n<p>The population of West Virginia is only 1.8 million people which is about three times smaller than the size of New Jersey, whose population is over 9 million. For anyone familiar with Frenchtown and Hunterdon County, New Jersey, you know it\u2019s considered rural. It\u2019s a fairly pristine county of horse farms and rolling hills that hasn\u2019t changed all that much since I was a baby, and you can enjoy the Delaware River, woods, trails and lakes as well as a bunch of small, noncommercial river towns. I also lived across the river in Pennsylvania for about twenty years, a bit more rural, more wild, considerable distance from a good hospital, which was an issue for me then as well, and I\u2019ll write more about that soon. I\u2019ve spent my life living in both small towns and the woods and I\u2019ve always considered myself as a \u201ccountry girl\u201d.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>But West Virginia was a whole new wild and wonderful world, vast and stunning and isolated.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:image {\"align\":\"center\",\"id\":21709,\"width\":825,\"height\":543,\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} --><\/p>\n<figure><\/figure>\n<p><!-- \/wp:image --><!-- wp:paragraph --><\/p>\n<p>We bought an adorable bungalow in the mountains, previously owned by an artist who had put so many gorgeous touches on the house and in her gardens. We got to inherit it all. I immediately got to planning more gardens, planting vegetables and flowers, and harvesting blueberries, raspberries and blackberries. Tree frogs and more birds than I\u2019ve ever seen, and Luna moths the size of my hand delighted both of us. We created Instagram accounts to document the wildlife around us. We\u2019d found a sanctuary on the mountain and even though we suddenly had tasks like chopping wood for the winter, and chasing a lot of unexpected visitors out of our house (hello, garter snake) we loved it. We moved right before the pandemic, so we had these ancient, untouched acres of oak and redbuds and dogwood to explore and care for instead of being trapped in our old apartment.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>The only thing we kept saying, as the last few years have rolled by, was that if anything happened to one of us, we were way too far away from help, be it family or doctors. <em>How would an ambulance or fire truck get up our dirt road and steep drive?<\/em> But we weren\u2019t even fifty yet, both have been very healthy throughout our lives, and so we weren\u2019t terribly worried. Nonetheless, at the end of 2022, Joe got a new job again and we put our beloved home up for sale to move closer, and in Virginia, sort of a resurrection of our original plan. The mountains healed me. I was ready to get back to people. In small doses, anyway.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:image {\"align\":\"right\",\"id\":21712,\"width\":478,\"height\":345,\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} --><\/p>\n<figure><img decoding=\"async\" class=\"alignright\" src=\"https:\/\/i0.wp.com\/cancerhopenetwork.org\/wp-content\/uploads\/2023\/05\/kids-on-the-mt-1.jpg?resize=478%2C345&#038;ssl=1\" alt=\"\" width=\"478\" height=\"345\" data-recalc-dims=\"1\" \/><\/figure>\n<p><!-- \/wp:image --><!-- wp:paragraph --><\/p>\n<p>At the same time, Joe started experiencing problems with swallowing. He\u2019s had some issue with this in the years I\u2019ve known him, but it had never been severe or persistent enough to be a warning sign. And prior to my new cancer education, I wouldn\u2019t have even known it to be a warning sign. I sometimes thought it was a response to anxiety, and in December with a new job and pending move, that was my assumption once more. But then he got the flu and completely lost his appetite. We live about fifteen minutes from a decent-sized town that has most of the amenities one needs, basic as they are\u2014Walmart, Tractor Supply, Sheetz\u2014and when he wasn\u2019t getting better, I worried he might have pneumonia. So, he went to EZ care for a chest scan.\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Maybe two days later, after we got the results of that scan, I wrote in my journal:<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><em>January 18. Day One.<\/em><\/p>\n<p><!-- \/wp:paragraph --><!-- wp:heading --><\/p>\n<h2><strong>Cancer Diagnosis &amp; The Other Side of Rural Living<\/strong><\/h2>\n<p><!-- \/wp:heading --><!-- wp:paragraph --><\/p>\n<p>Although we didn\u2019t have the official diagnosis yet, I knew the scan was accurate once I did a little research. He had esophageal cancer and it had already spread to his lymph nodes. Later we would learn it\u2019s Stage Four. It\u2019s still baffling to us both that something so extreme can be lurking in your body without making itself known until the last minute. Especially in someone who has now <em>just<\/em> turned fifty, has always been physically active, never overweight a day in his life, doesn\u2019t smoke, has no family history of cancer, no real markers for this beast.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:image {\"align\":\"right\",\"id\":21710,\"sizeSlug\":\"full\",\"linkDestination\":\"none\"} --><\/p>\n<figure><img decoding=\"async\" class=\"alignright\" src=\"https:\/\/i0.wp.com\/cancerhopenetwork.org\/wp-content\/uploads\/2023\/05\/0.jpg?w=800&#038;ssl=1\" alt=\"\" data-recalc-dims=\"1\" \/><\/figure>\n<p><!-- \/wp:image --><!-- wp:paragraph --><\/p>\n<p>If one thing is true, cancer does not care about statistics.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>My first panicked thought was: we need to move, like, <em>yesterday. <\/em>While there is a small, 25-bed hospital about an hour away, the closest cancer center is an hour and a half. As I began reading about how he would be treated\u2014chemoradiation that would involve daily appointments\u2014I realized there was no way we could stay home while this carried out. Not only because driving three hours a day for a fifteen-minute radiation appointment would be ridiculous, but what if there was an emergency? I\u2019ve heard plenty of stories; I knew the poison that kills cancer is no joke.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>This is where a good friend of mine stepped in to help. She works for Cancer Hope Network and she reached out with resources from her organization and other connections immediately. I had no idea there was so much out there for families going through cancer. Mentor connections, gas cards, hotel discounts, even pet care services and so much more. In the beginning, after a diagnosis like this, there is so much to weed through, but Rachel made it possible for me to focus on a few really important priorities.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Still, it\u2019s just <em>us<\/em> out here in the woods. We\u2019ve made a few friends, (bookstore related of course) but not a ton since most of our time here was during a pandemic!\u00a0 While our friends have been incredibly supportive and helpful, they are not physically close to our actual home, and I\u2019m not sure we could expect them to truly be on the inside of this awful journey, in the actual muck and darkness and constant hypervigilance that comes along with it.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>So just like that, our sanctuary of a home turned into a trap. But we couldn\u2019t go forward with selling it during Joe\u2019s treatment, so we took it off the market and started to draft a new plan that involved living in a hotel near the hospital for six weeks. A plan that was <em>only<\/em> made possible by our enormous network of distant friends and family who generously contributed to our fundraiser. A plan that the majority of people who live in West Virginia would never be able to make. Although the hotel offered a generous discount for cancer families, it still amounted to thousands of dollars. Money we could not have come up with on our own.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:heading --><\/p>\n<h2><strong>The Challenges of Rural Cancer Care<\/strong><\/h2>\n<p><!-- \/wp:heading --><!-- wp:paragraph --><\/p>\n<p>This has opened my eyes to the struggles in rural areas in a whole new way, and while Joe and I <em>do<\/em> have the resources to change our living arrangements so that he has the care he needs\u2014again because of so many generous souls\u2014that would not be the case for most people in this region. According to a <a href=\"https:\/\/www.pbs.org\/newshour\/show\/young-doctors-prepare-to-tackle-rural-healthcare-shortage-in-west-virginia\">recent PBS broadcast<\/a>, (which I encourage you to watch) nearly two-thirds of areas with a shortage of primary health care professional are in rural communities, let alone specialized medicine like cancer care. And 99% of medical training takes place in cities and suburbs, where doctors usually end up working. So rural areas are frequently left to very few options.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Medical schools like WVU are beginning to take this on by giving doctors extra training and education to specifically work in rural areas since federal programs have failed the region. In many cases West Virginia residents have to drive far more hours than Joe and I have to see a specialist. So, these primary doctors have to serve as specialists in order to help their patients avoid such trials just to receive quality health care.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>People who live in rural areas are often overlooked and unfairly judged. I have received hurtful comments from people for moving to a \u201crural red state\u201d, and in today\u2019s polarized society the divide between the choice to live urban or rural has become a political decision at best, and a moral one at its worst, which is completely ridiculous. The reality is, people of all backgrounds and politics and belief systems live in both cities and in rural areas, and everyone deserves a quality level of health care. Without easy access, people avoid appointments and treatments because the financial burden is too high, or they don\u2019t have reliable transportation or the ability to stay in a hotel. While some young people are beginning to get their medical education and return to the rural land they love to practice, West Virginia is in need of so many more.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>Receiving this diagnosis has been a blow to both our lives, financially, emotionally and physically. We are slowly figuring it out despite the uncertainty, are both adaptable people who will run with whatever change is needed in our own lives, but in the meantime, I\u2019m learning how much more difficult this diagnosis and rural cancer care could be for other families. I find it incredibly sad that such a beautiful landscape, a place where <em>so<\/em> many escape to from the city for recreation and peace, is hurting for such basic needs. We cannot write off rural areas simply because it\u2019s easy to look away, or we don\u2019t like the perceived politics, or in our case, leave. It\u2019s not fair to use up a place for our own enjoyment (or industry) and turn a blind eye to the people who have lived here and cultivated the land for generations. I look forward to sharing more of our story, and the stories of others I\u2019ve witnessed while living here to help further expose the struggle for what many people in other areas of the US consider basic needs. I\u2019m not the first in any sense to become aware or be affected by of some of the unique issues in rural areas, but in my own tiny way I hope to help.<\/p>\n<p><!-- \/wp:paragraph --><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t\t\t<\/div>\n\t\t","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"excerpt":{"rendered":"<p>Cancer survivors and family members share the advice they\u2019d give a friend who\u2019d recently received a diagnosis. <\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"author":34,"featured_media":21717,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_newsletter_tier_id":0,"footnotes":""},"categories":[78],"tags":[],"post_folder":[],"acf":[],"yoast_head":"<!-- This site is optimized with the 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