{"id":11980,"date":"2022-03-11T19:32:59","date_gmt":"2022-03-11T19:32:59","guid":{"rendered":"https:\/\/cancerhopenetwork.org\/?p=11980"},"modified":"2023-01-31T20:34:24","modified_gmt":"2023-01-31T20:34:24","slug":"ostomate-power-living-well-after-colorectal-cancer","status":"publish","type":"post","link":"https:\/\/cancerhopenetwork.org\/blog\/ostomate-power-living-well-after-colorectal-cancer\/","title":{"rendered":"Ostomate Power: Living Well After Colorectal Cancer","gt_translate_keys":[{"key":"rendered","format":"text"}]},"content":{"rendered":"\n

\u201cYou will be ok. It\u2019s something people say to other people all the time. But I have to say that it\u2019s true. Have hope. Have faith. Fight and know that you will be ok. My treatment was tough, it was so very difficult, but it saved my life. I\u2019m still able to function, to have a quality of life as good as or better than before my Colorectal Cancer<\/em> diagnosis.\u201d<\/em><\/p>\n\n\n\n

It\u2019s been a long time since 2013 when Support Volunteer Teres was busy making plans. Her son was graduating college. After years of dreaming, discussing and planning, she and her husband were preparing to move their family to South Carolina.<\/p>\n\n\n\n

Then, she was diagnosed with colorectal cancer.<\/p>\n\n\n\n

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\u201cThe doctor said \u2018you have a tumor,\u2019 Teres recalls. \u201cThat just shattered me. I wasn\u2019t feeling ill.  Other than giving birth, I\u2019d never been hospitalized. Suddenly, I\u2019m getting radiation and a six-week course of 5FU chemo in a pump I carried with me 24-hours a day. We were discussing my ostomy and all that would entail.\u201d<\/p>\n\n\n\n

Like many patients, she began her treatment believing she was mentally and physically prepared for the side effects she\u2019d discussed with her medical team. The reality was much more difficult than she\u2019d expected.<\/p>\n\n\n\n

\u201cAll I would do was cry. I got really depressed and I remember saying to my husband and my kids, \u2018I\u2019m not going to get through this, you\u2019re going to have to put me away somewhere.\u201d It was at that point Teres called Cancer Hope Network.<\/p>\n\n\n\n

\u201cI loved my cancer support group, but they couldn\u2019t relate to me specifically on colorectal cancer and having an ostomy, especially as a woman. When I called CHN, I was matched with someone in my age bracket, who had had the same treatment and was five years out.\u201d<\/p>\n\n\n\n

That Support Volunteer shared a perspective Teres desperately needed. \u201cI\u2019d never met anyone or talked to anyone who had an ostomy. I didn\u2019t know if it was a handicap where I wouldn\u2019t be able to do anything. I had no idea how it would look for a young person who is married. It was so nice for her to say \u2018This is what you can expect\u2019 because the unknown is so scary.\u201d<\/p>\n\n\n\n

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\u201cWhat I really love about Cancer Hope is the detailed matching. Yes, it\u2019s important to talk to people about cancer who\u2019ve walked it \u2013 but when you look a little closer and find someone with a shared diagnosis or treatment, you can really talk to someone who has walked the same walk. It\u2019s hard to have a conversation with someone who has never had this ostomy experience. It\u2019s been really great to talk to other ladies and share my story. I can reassure them that their lives are not going to stop.\u201d<\/p>\n\n\n\n

Teres has always been a helper, volunteering for a variety of community service organizations through the years. But her diagnosis marked a turning point. \u201cMy desire to provide support to others has become heightened since I was sick. I think about all the support and love that I received, which was wonderful. Even strangers stepped up to let me know I was not alone. People I\u2019d never met would send me text messages, I have a box of cards from people who would send me cards to say they were thinking of me. I know how important it is to make sure that you\u2019re giving support.\u201d <\/p>\n\n\n\n

During treatment, Teres was surrounded by a loving family, her \u201crock solid\u201d husband and \u201clots of prayer warriors who were constantly encouraging me.\u201d An independent person, more accustomed to managing responsibilities and keeping a tight grip on the reins, it was a big adjustment. \u201cI had to humble myself at that time and rely on others to help me through the process.\u201d<\/p>\n\n\n\n

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Today, she has embraced her \u201cnew normal,\u201d paying forward the information and courage that was shared with her. Her husband launched his own trucking company in 2018. Her youngest son joined the Army in 2019 and in 2020, her oldest son welcomed a daughter \u2013 and Teres\u2019 first grand child.<\/p>\n\n\n\n

Settled in South Carolina, Teres was still seeing her New Jersey-based care team. In March 2020 she was adjusting to life as an empty nester when the pandemic hit. Teres, in the middle of a visit filled with doctor\u2019s appointments and awaiting a colonoscopy was stuck in place \u2013 unable to leave New Jersey. Her husband, a long-distance trucker, was on the road. A self-described news junkie, she was glued to the television, watching as another \u201cnew normal\u201d began.<\/p>\n\n\n\n

Her own experience heightened her compassion for patients undergoing their first rounds of diagnosis and treatment. \u201cI have a lot of family in the medical field and was hearing the pain they were going through. I was lucky. I\u2019m physically well and doing ok. My doctors were able to have phone conferences with me. I\u2019d get really emotional thinking about all the people who truly needed to physically be at their doctor\u2019s offices.\u201d<\/p>\n\n\n\n

\u201cI remember talking to some matches during that time \u2013 the overwhelming struggles that they were facing trying to get to treatment. People weren\u2019t allowed to accompany them to appointments and visits. You\u2019re already being sick and now you don\u2019t have any support.\u201d That empathy further strengthened her commitment to providing support over long distances.<\/p>\n\n\n\n

\u201cI had some friends who lost a lot of loved ones during Covid and they couldn\u2019t be a part of funeral arrangements or see people. Whether it was through you guys matching me or other family members and friends who were lonely, I was trying to be a support system while trying to deal with my isolation,\u201d she recalls. \u201cIt made me more aware of the present and how grateful and thankful I am that I\u2019ve endured. I\u2019m in my ninth year of being able to say that I\u2019m cancer free. I didn\u2019t get sick. I was able to still be helpful and useful, especially at a critical time when so many people needed help.\u201d<\/p>\n\n\n\n

Cancer Hope Network provides free one-on-one emotional support to adult cancer patients and their loved ones by matching them with survivors and caregivers trained as Support Volunteers and supported by a team of healthcare and social work professionals. Each of CHN\u2019s 400+ volunteers is at least one year post-treatment or successfully undergoing maintenance therapies. CHN serves cancer patients in the United States and Canada.\u00a0To connect with a Support Volunteer who\u2019s had colorectal cancer, an ostomy \u2013 or other experience similar to your own, click HERE<\/strong> <\/a>or call 877.467.3638.<\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"excerpt":{"rendered":"

Nine years after chemo and her ostomy, Teres is helping others fight the stigma, depression and fear surrounding colorectal cancer. <\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"author":23,"featured_media":12011,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_newsletter_tier_id":0,"footnotes":""},"categories":[78],"tags":[24,45,142,97,98],"post_folder":[],"acf":[],"yoast_head":"\nOstomate Power: Living Well After Colorectal Cancer<\/title>\n<meta name=\"description\" content=\"Nine years after chemo and her ostomy, Teres is helping others fight the stigma, depression and fear surrounding colorectal cancer.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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